Aging and Long-Term Care (10 Hours) > Chapter 5

Chapter 5: Long-Term Care


As a result of diminished physical and mental capacities, long-term care becomes a necessity for many older people. This care can be provided in different settings and from different sources including the elderly moving in with family members or vice-versa, paid home healthcare nurses and skilled nursing facilities (nursing homes). The decisions regarding long-term care are difficult. It is a sign to the older person that they are no longer fully independent or self-sufficient. There are also emotional issues regarding whether family members or hired professional personnel will provide care, and what level of care is necessary. The decision to place the elderly person in a nursing home can be devastating. Family members often feel guilt, while the elderly person may feel unloved and rejected. Symptoms of depression, anger, resentment, and denial may be present.

[QN.No.#46.Alternatives for long-term care include:]
[QN.No.#47.Because of the clear need, long-term care decisions are easy to make.True/False]

Homecare


As parents age and need assistance, adult children often consider taking elderly parent(s) into their own home. However, not everyone is a caretaker. Some can care-take children, but not people with special needs or illnesses, at any age. Others have no problem caring for an older person with whom they feel a soul connection (Crystalinks n.d.).

Should family members decide to either move in with the elderly person, or have the elderly person move in with the family, there will be some significant home-life adjustments. As a result of frustration from losing their independence, the elderly person may become demanding and critical of the caregiver. Sometimes they can become abusive, even physically.

The family now has another person to care for who is sometimes even more demanding than children. The elderly may depend primarily, or even exclusively, on the family for social interaction and may need help with various personal needs and hygiene. Besides feeling frustrated, this can also be embarrassing to the elderly person.

In these situations, helping family members create and practice healthy styles of communication can go a long way in reducing frustrations. It is also important to link caregivers and the elderly to resources. There are senior centers where the elderly person can go during the day to enjoy interaction and age appropriate activities. There are also community caregiver support groups that can provide ideas and the emotional boost that is needed from time to time. One source of good information may be found at http://www.ndsu.edu/ndsu/aging/caregiver/pdf/family/module.pdf.

Homecare Services


There are times when an elderly person is able to do most things for themselves and wish to remain independent. For this situation there are a number of options for someone to come to the home to provide specified types of help. If the older person can afford it, this can be a perfect solution. There are a number of options for pay, although many of them may be reduced in times like the current national financial crisis.

Types of payers of home-care services include (Moffa-Trotter and Anemaet 2002, 371):

  • Medicare and/or Medicaid (Title XIX)
  • Private insurance
  • Title III: Older Americans Act
  • Title XX: Social Security Service Block Grant
  • Other federal government-funded programs: CHAMPUS, VA, HIS
  • Non-federal government funding: county, state, local
  • Worker's compensation
  • Private self-pay
  • Charity: specific funds designated for care of patients meeting eligibility criteria


The following table shows examples of home care provided under several federal programs (Kane et al 2004, 418):



Home-Health Agencies


Home-health agencies are organizations that provide health care in the home. Medicare will certify a home-health agency if it offers skilled nursing services and at least one additional therapeutic service:
  • Skilled nursing (required service for Medicare certification)
  • Physical therapy
  • Occupational therapy
  • Speech therapy
  • Medical social workers (assist with information about community resource planning and counseling)
  • Certified home health aides (assist with personal care and activities of daily living)
  • Registered dietitians
Under this same classification is the Community Alternative Program (CAP), a Medicaid funded program offering an alternative to nursing home placement. The only seniors that are available for this program are those who are disabled or who have AIDS.

  • CAP/DA---Disabled adults
    • In-home aide for personal care or respite
  • CAP/AIDS---For persons diagnosed with AIDS
    • In-home aide for personal care or respite
    • RNs and LPNs for nursing care or respite

Homemaker and Homecare-Aide Agencies


Many of the homemaker and homecare-aide agencies are licensed; those are usually the ones that will also offer the best financing options. Many of them are under the auspices of a county. The following services are offered in various combinations, depending on the agency, to the qualified patient:
  • Homemaker services
    • Food management: Shopping, food preparation, safety
    • Laundry: Washing, mending, ironing
    • Home management: Dusting, vacuuming, teaching cleaning skills
    • Financial management: Budget assistance, funding assistance
    • Minimal personal care: Help with bathing and shampoos, help with activities of daily living
    • Transportation: To routine doctor appointments, for essential shopping and errands
    • Special needs assistance: To find devices, etc. to help handicapped achieve maximum independence in their homes
    • Additional services may be offered
  • Homecare-aide services
    • Assistance with personal care, such as bathing, shampoos, dressing, etc.
    • Providing general home maintenance
    • Providing transportation to routine doctor appointments, for essential shopping and errands
    • Additional services may be offered


Often the adult and aging sections of state departments of social services will have volunteers who will come in and act as a companion for a few hours a week, usually to give respite to a caretaking spouse.

Independent Providers


Independent providers are private groups or individuals who offer many of the same services as those offered above. They usually require private pay.

Hospice


Hospice is special care, either in the home or in a hospice facility, designed to comfort and support patients with limited life expectancy and their families. Patients are referred to hospice when life expectancy is about six months or less; to continue longer than six months, physician certification is required.

[QN.No.#48.A Special care facility designed to comfort and support patients with limited life expectancy and their families:]

Hospice care does not prolong life or hasten death. Its goal is to improve the quality of the patient's last weeks, days, or hours by offering comfort and dignity. They address all symptoms of disease with emphasis on controlling pain and discomfort (Hospice Foundation 2009). They can offer (AoA 2004):

  • Support in making decisions about treatments and options for care
  • Information about advance directives, such as living wills, that can help communicate choices about care
  • Medical treatment that aggressively seeks to prevent, assess, and treat symptoms of discomfort and disease progression
  • Comfort-focused (palliative) care provided by coordinated teams of professionals that include nurses, home health or certified nursing aides, social workers or counselors, chaplains, physicians, and trained volunteers
  • Care that is guided by patient/family goals and priorities
  • Bereavement support to help each find comfort and hope


Consider calling hospice when:

  • There are questions about what to expect physically, emotionally and spiritually as the end of life approaches
  • Information is needed about resources that can help you manage your responsibilities as a caregiver
  • There are questions about how to have sensitive conversations about treatment choices, living arrangements, and personal care
  • Help is needed with preventing and managing symptoms related to an illness or its treatment
  • Guidance is needed in finding the opportunities for hope, comfort, and meaning that are part of this important time of life
  • One is experiencing feelings of loss, sadness, or grief associated with the illness or death of a loved one

Wellness of Caregivers

(NFCSP 2003)
Awareness of the difficulties of caregivers of elderly and ill people has come to light in recent years. Caregivers have identified some of the lessons they have learned:

  • It is as necessary to care for the caregiver as it is to care for a loved one.
  • Get adequate rest and exercise.
  • Have a sense of humor.
  • Acknowledge your own poor and adverse health.
  • Do not ignore your own health. If you do not take care of yourself, in the long run you will not be able to be a good caregiver for someone else.
  • Recognize when you are no longer able to care for your loved one.
  • Do not be ashamed to ask for help.
  • Seek balance in your life as a caregiver by taking time out four your own needs and interests.
  • Consider joining a support group. Such groups can be extremely valuable in providing a safe place to share personal experiences and feelings with others who are in similar circumstances.


[QN.No.#49.Which of the following is NOT good advice for a caregiver?]

Factors that contribute to the physical and emotional stress that family caregivers experience include:

  • Internal sources of stress that come with providing care to a chronically ill relative
  • External sources of stress such as transportation and financial pressures associated with caregiving (on average, caregivers spend 11% out-of-pocket for services not covered by Medicare)
  • Chronic stress in never knowing what challenge will come next
  • Barriers to health promotion activities may include lack of time or respite care, depression, guilt and denial


[QN.No.#50.Factors that contribute to the physical and emotional stress that family caregivers experience include:]

Ways in which family caregivers can ease some of their caregiving burden and engage in more health-promoting and disease-prevention activities might include:
  • Use the opportunities when taking a loved one to the doctor to address concerns and/or ask questions about your own health.
  • Prevent adverse health by getting immunized and obtaining routine screenings.
  • Also be mindful of your own nutrition. Do not try and do everything by yourself. Ask for help from others and utilize local resources, such as the Eldercare Locator at 1-800-677-1116. Look for suggestions at http://www.ndsu.edu/ndsu/aging/caregiver/pdf/family/module.pdf.
  • Quality respite services can allow family caregivers to have a break from their current pressing challenges and give them some much needed time to themselves.
  • Be aware of the all of the programs and services available to ease the burden of caregiving, such as the National Family Caregiver Support Program."


An excellent link for caregivers is: http://www.caregiver.com/.
 
Aging and Long-Term Care (10 Hours) > Chapter 5
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